In 1976, Michael Rogers published an article on Henrietta Lacks in Rolling Stone magazine. His story brought national attention to the Lacks family and to newly surfacing issues of medical and research ethics.
A group of bio-ethicists situates the controversy over Henrietta Lacks in the context of systemic racism in biomedical research, with special reference to the Tuskegee syphilis experiments. Also provides an update on controversies and agreements regarding the HeLa cells since the publication of Skloot’s book.
A biological anthropologist cites Lacks’s case as one example of the scientific and financial interests that drive much research in molecular genetics and molecular anthropology. His main focus is a comparable situation with the Havasupai tribe of Arizona.
A medical anthropologist describes the ill-conceived plan by UC Berkeley to have incoming freshman provide DNA samples as a community-building activity. She cites Lacks’s case as an example of when the gifting of bio-specimens can go awry.
An award-winning article by a high school student. She draws on site visits, archival research, and numerous interviews with key players to review the main controversies and provide an update on the legislative and policy changes that have resulted from Skloot’s book. Provides an extensive annotated bibliography.